Wednesday, November 30, 2011

New Bracelets

Some new colors that James worked on today... 
Paracord bracelets are $5.00 and all profits are going to the Scleroderma Foundation.  Shipping is $2.00

Tuesday, November 29, 2011

Thank You

Thank You for all of the support we have recieved over the last few weeks from family and friends!  I have also met many new people from the Scleroderma websites, everyone has been so helpful and friendly! 

Monday, November 28, 2011

Another Dr

Made an appointment with another doctor today, Dr. Vasiloudes in Brandon - we will see him on Dec 8th...  The Dermatology department at USF referred me to him.  Will see what medication he recommends and I am going to talk to him about the spots on James' hands also

Sunday, November 27, 2011

Paracord Cross Necklace

Paracord Cross Necklace, $10, all proceeds go to the Scleroderma Foundation.  This one is Yellow and Blue, but any combination of the colors that we have can be made. 

Saturday, November 26, 2011

Paracord Bracelets

here are all the colors the boys have made so far.  Let us know if you would like one, all the bracelets pictured are $5.00 and the profits will be donated to the Scleroderma Foundation.

Janes and Noah working on the paracord bracelets

More Information

Here is some more information on types of Morphea.  Morphea is a type of Scleroderma.

New Medication

Last night we were able to pick up the Dovonex cream from the pharmacy.  James will start that today.  Now he is using the Dovonex twice a day, the Clobetasol twice a day and going to the Photo Therapy three times a week.  We went to USF on Wednesday and they prescribed the creams and recommended that we go to another doctor to see which oral medications he would suggest.   I have to call him Monday to set up an appointment.  

Thursday, November 24, 2011

Paracord Bracelets

James is making Paracord Bracelets to raise money for the Scleroderma Foundation.  We talked to someone there a few days ago and they were very happy that James would like to raise awareness and money for the Foundation.  Morphea is very rare and there is really no good cure, research is still being done to try to find out the best course of treatment.  I will post some pictures of the bracelets and if anyone would like to order, please let me know.  James is still making lots of different colors, but the ones we have available now are red/white/green, desert camo, woodland camo and red/white/blue.  The red/white/green and red/white/blue are $5.00 each and are about 3/4 of an inch wide.  The two camo are $8.00 and are a little over an inch wide.  If anyone is interested in ordering, please let me know either by commenting or by email,

Thank You!

Happy Thanksgiving!

Hope everyone had a great Thanksgiving, we had a wonderful time with friends and family. 

Today James started using his Clobetasol propionate cream for his morphea.  We will see how this works, he is supossed to start using Dovonex also, but the pharmacy had to order it, so he will start it tomorrow or Saturday.

Wednesday, November 23, 2011

Diagnosis - Oct 24th 2011

James is 13 and was diagnosed with linear morphea on his left leg and thigh.  We have been going to several doctors and on Oct 24th, 2011 the dermatologist finally diagnosed linear morphea.   Since then, we have started phototherapy treatments.