Thursday, December 29, 2011

Donation

Just sent in a $250 donation to the Scleroderma Foundation for all of the bracelets that James and his friend Noah have sold!
I am very proud of both of them! They have been raising awareness for scleroderma and raising money also.

Tuesday, December 27, 2011

Paracord Bracelet Colors

James is selling paracord bracelets to raise money for the Scleroderma Foundation.  The colors pictured above are what we have available.  Each bracelet is $5.00 with $2.00 shipping.  If you order more than one bracelet, email for a shipping quote.  Email smalley91@gmail.com with your colors (one or two) that you would like in your bracelet and the length, 7", 8", 9" or anything in between. 

The colors in the top picture from left to right are -
Woodland Camo
Multi Camo
Gray
Desert Camo
Digital Camo
Safety Green
Orange
Electric Blue
Yellow
Gold
Dark Gray
Black
Green
Maroon
Dark Orange
Red
Blue
Dark Blue
Christmas Camo
Pink
Navy Blue
We also have white, not pictured.


Below are what the completed bracelets look like. 

Bloodwork

Taking James to get some bloodwork done tomorrow morning. 

The appointment with the orthopedic dr went good.  He said he saw no arthritis forming yet, and he took measurements of James' hip, knee, and ankle movement. 

Monday, December 19, 2011

Orthopedic dr

We have an appointment for Friday for James with an orthopedic doctor to evaluate his hip and leg range of motion.  James has recently started worrying more about his knee and hip movement. 

He is doing good remembering his medicine twice a day. 

He has also been very busy with bracelet orders.  James and his friend Noah have done a great job!

Saturday, December 17, 2011

James is doing good, he took his second dose of methotrexate last night, he is doing good remembering his predinosone and folic acid everyday. 

He has started complaining a little more about his knee bothering him. 

Sunday, December 11, 2011

Doing Good!

James is doing good with the new medicine that he is taking.  has to take one twice a day, one once a day,  and the other one once a week.   Im not sure how long it will be before we can start to see results, but we are going back to the Dr on Jan 5th. 

Friday, December 9, 2011

New Medication

Took James to Dr Vasiloudes in Brandon yesterday.  We really liked him, he seemed very knowledgable and had a friendly staff.  James is starting on methotrexate, prednisone, and folic acid tomorrow.  We also do not have to go to phototherapy any more because the Dr thinks that with the problems in James' knee and possibly hip, the medicine is the best treatment.  We are still continuing the creams though. 

Im hopeful that the new medication will work for him!

Wednesday, December 7, 2011

Tuesday, December 6, 2011

We have been busy taking orders for the bracelets.  James' friend Noah has been very helpful and is selling lots of bracelets.  My new friends with the SouthEast Florida Scleroderma Foundataion have been selling them also.  I am very greatful to everyone who has supported James and our family!  We will be sending our first donation to the Scleroderma Foundataion in the next few weeks! : )

Sunday, December 4, 2011

Bracelet Colors

Here are some of the colors that I have available.

Yellow
Goldenrod
Maroon
Red
Green
Orange
White
Pink
Purple
OD Green
Safety Green
Black
Navy Blue
Blue
Desert Camo
Digital Camo
Woodland Camo
Red/white/blue mixed together
Red/Green/White mixed together

Friday, December 2, 2011

Dr. Jacobe

Dr.Jacobe is doing research at UT Southwestern in Dallas. I spoke to a dr there yesterday.  We might take a trip to Dallas in January to have James evaluated and also enroll in the registry. 

http://www.utsouthwestern.edu/fis/faculty/54629/heidi-jacobe.html