Donation

Just sent in a $250 donation to the Scleroderma Foundation for all of the bracelets that James and his friend Noah have sold!
I am very proud of both of them! They have been raising awareness for scleroderma and raising money also.

Paracord Bracelet Colors

James is selling paracord bracelets to raise money for the Scleroderma Foundation.  The colors pictured above are what we have available.  Each bracelet is $5.00 with $2.00 shipping.  If you order more than one bracelet, email for a shipping quote.  Email smalley91@gmail.com with your colors (one or two) that you would like in your bracelet and the length, 7", 8", 9" or anything in between. 

The colors in the top picture from left to right are -
Woodland Camo
Multi Camo
Gray
Desert Camo
Digital Camo
Safety Green
Orange
Electric Blue
Yellow
Gold
Dark Gray
Black
Green
Maroon
Dark Orange
Red
Blue
Dark Blue
Christmas Camo
Pink
Navy Blue
We also have white, not pictured.


Below are what the completed bracelets look like. 

Bloodwork

Taking James to get some bloodwork done tomorrow morning. 

The appointment with the orthopedic dr went good.  He said he saw no arthritis forming yet, and he took measurements of James' hip, knee, and ankle movement. 

Merry Christmas!

Hope everyone had a great Christmas!

Orthopedic dr

We have an appointment for Friday for James with an orthopedic doctor to evaluate his hip and leg range of motion.  James has recently started worrying more about his knee and hip movement. 

He is doing good remembering his medicine twice a day. 

He has also been very busy with bracelet orders.  James and his friend Noah have done a great job!

James is doing good, he took his second dose of methotrexate last night, he is doing good remembering his predinosone and folic acid everyday. 

He has started complaining a little more about his knee bothering him. 

Doing Good!

James is doing good with the new medicine that he is taking.  has to take one twice a day, one once a day,  and the other one once a week.   Im not sure how long it will be before we can start to see results, but we are going back to the Dr on Jan 5th. 

New Medication

Took James to Dr Vasiloudes in Brandon yesterday.  We really liked him, he seemed very knowledgable and had a friendly staff.  James is starting on methotrexate, prednisone, and folic acid tomorrow.  We also do not have to go to phototherapy any more because the Dr thinks that with the problems in James' knee and possibly hip, the medicine is the best treatment.  We are still continuing the creams though. 

Im hopeful that the new medication will work for him!

Super Bowl Doritos contest

Our friends have created a Doritos commercial for the Super Bowl contest... You should watch, its very funny!

http://www.crashthesuperbowl.com/#/gallery/?video=17132

We have been busy taking orders for the bracelets.  James' friend Noah has been very helpful and is selling lots of bracelets.  My new friends with the SouthEast Florida Scleroderma Foundataion have been selling them also.  I am very greatful to everyone who has supported James and our family!  We will be sending our first donation to the Scleroderma Foundataion in the next few weeks! : )

Bracelet Colors

Here are some of the colors that I have available.

Yellow
Goldenrod
Maroon
Red
Green
Orange
White
Pink
Purple
OD Green
Safety Green
Black
Navy Blue
Blue
Desert Camo
Digital Camo
Woodland Camo
Red/white/blue mixed together
Red/Green/White mixed together

James' iguana

A video of James' iguana when we first got it. 

http://www.youtube.com/watch?v=FgFECtdOwVU

Dr. Jacobe

Dr.Jacobe is doing research at UT Southwestern in Dallas. I spoke to a dr there yesterday.  We might take a trip to Dallas in January to have James evaluated and also enroll in the registry. 

http://www.utsouthwestern.edu/fis/faculty/54629/heidi-jacobe.html

New Bracelets

Some new colors that James worked on today... 
Paracord bracelets are $5.00 and all profits are going to the Scleroderma Foundation.  Shipping is $2.00

Thank You

Thank You for all of the support we have recieved over the last few weeks from family and friends!  I have also met many new people from the Scleroderma websites, everyone has been so helpful and friendly! 

Another Dr

Made an appointment with another doctor today, Dr. Vasiloudes in Brandon - we will see him on Dec 8th...  The Dermatology department at USF referred me to him.  Will see what medication he recommends and I am going to talk to him about the spots on James' hands also
. 

Paracord Cross Necklace

Paracord Cross Necklace, $10, all proceeds go to the Scleroderma Foundation.  This one is Yellow and Blue, but any combination of the colors that we have can be made. 

Paracord Bracelets

here are all the colors the boys have made so far.  Let us know if you would like one, all the bracelets pictured are $5.00 and the profits will be donated to the Scleroderma Foundation.

Janes and Noah working on the paracord bracelets

More Information

Here is some more information on types of Morphea.  Morphea is a type of Scleroderma. 

http://www.scleroderma.org/pdf/Medical_Brochures/Localized.pdf

New Medication

Last night we were able to pick up the Dovonex cream from the pharmacy.  James will start that today.  Now he is using the Dovonex twice a day, the Clobetasol twice a day and going to the Photo Therapy three times a week.  We went to USF on Wednesday and they prescribed the creams and recommended that we go to another doctor to see which oral medications he would suggest.   I have to call him Monday to set up an appointment.  

Paracord Bracelets

James is making Paracord Bracelets to raise money for the Scleroderma Foundation.  We talked to someone there a few days ago and they were very happy that James would like to raise awareness and money for the Foundation.  Morphea is very rare and there is really no good cure, research is still being done to try to find out the best course of treatment.  I will post some pictures of the bracelets and if anyone would like to order, please let me know.  James is still making lots of different colors, but the ones we have available now are red/white/green, desert camo, woodland camo and red/white/blue.  The red/white/green and red/white/blue are $5.00 each and are about 3/4 of an inch wide.  The two camo are $8.00 and are a little over an inch wide.  If anyone is interested in ordering, please let me know either by commenting or by email, smalley91@gmail.com

Thank You!

Happy Thanksgiving!

Hope everyone had a great Thanksgiving, we had a wonderful time with friends and family. 

Today James started using his Clobetasol propionate cream for his morphea.  We will see how this works, he is supossed to start using Dovonex also, but the pharmacy had to order it, so he will start it tomorrow or Saturday.

Diagnosis - Oct 24th 2011

James is 13 and was diagnosed with linear morphea on his left leg and thigh.  We have been going to several doctors and on Oct 24th, 2011 the dermatologist finally diagnosed linear morphea.   Since then, we have started phototherapy treatments.